Having a chronic illness is:
- Have symptoms
- Ignore them for years/not realise there's a name for what you go through
- Have most medical professionals ignore/dismiss/gaslight you about your symptoms
- Discover there IS a name for your Thing and advocate for diagnosis
- Spend actual years jumping through ALL THE HOOPS and finally get diagnosed
- Move on with life because, other than diagnosis, those medical professionals offer no help, advice, support, or signposting
- Experience specific problems relating to your diagnosis
- Research how to deal with said symptoms
- Find recommendations online
- Introduce those new ideas
- Exacerbate something else entirely and, not only be unable to fix the initial problem, but give yourself another symptom (or three)
- Realise that the new ideas you found are for typical bodies and you are a Zebra, not a horse
- Get angry and buy a bunch of books on your condition in the hopes that they help
- Repeat steps 7-11/12 ad nauseum
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